Ok so I am new to this but I am going to try and use this to keep those who would like to know what is going with Keagan updated. All of the information you will read on her is information as I understand it... I do not claim to completely understand any of it or anything like that. I just ask if you read this or leave comments that you be kind and respectful.
Sooo lets get the basics on here and will continue to update with information as I have time...
Keagan was born on July 10th. When she was born, she was born with a malformed right ear. After not passing hearing tests in her right ear at the hospital we were referred to AEA here in Bettendorf for further testing. Throughout our journey these last 5 months she has had a bagillion different tests. So far she has had a clean MRI and a clean bone scan which is great news but she has had a few diagnoses'
So far she has...
hemifacial microsomia - is a congenital disorder that affects the development of the lower half of the face, most commonly the ears, the mouth and the mandible. It can occur on one side of the face or both. If severe it can lead to difficulties in breathing, obstructing the trachea and requiring a tracheotomy. It is the second most common facial birth defect after clefts, with an incidence in the range of 1 in 3500 to 4000
microcia -is a congenital deformity where the pinna (external ear) is underdeveloped (microtia). A completely undeveloped pinna is referred to as anotia (anotia). Because microtia and anotia have the same origin, it can be referred to as microtia-anotia.[1] Microtia can be unilateral (one side only) or bilateral (affecting both sides). Microtia occurs in 1 out of about 8,000–10,000 births.
duane syndrome - is a rare, congenital eye movement disorder most commonly characterized by the inability of the eye to abduct or move outwards. It affects the neural pathways associated with the sixth cranial nerve and the parts of the brain associated with reason and taste[
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